What People Don’t See When They Look at Me
There is so much about all of us that isn't seen from the outside. Our internal struggles, our physical struggles, issues we may be encountering with family, friends, career, etc. Although I know people didn't have x-ray vision into my world prior to diagnosis,...
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Food: The Final Frontier
It’s been awhile since my last post. I’ve been doing a lot of thinking about what my next moves are – in life and for this blog. And this is what I’ve worked out so far: For some time now I’ve enjoyed a certain level of predictability in my life. My symptoms, while...
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2 Years After
Well, it is that time of year again where dates are flying towards me and reminding me of the first days, weeks and months of this new life of mine. It is a time of reflection and admittedly, sadness. Although one is not able to conjure up the feeling of physical pain...
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The Time to Shine
I sometimes have ideas for a blog post long before I am ready to write the whole thing. In that case, I may save a draft with just a meme, or just a title, or in this case, both. I thought about this topic somewhere around the end of last year. What’s interesting...
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Always.Wanting.More.
Some may look at that title and think that wanting more than what you have is a bad thing…but not me. It is the thing that keeps me going. It is the thing that has provided me with drive and determination. It is what made me travel the world. It is what made me come...
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Interlude – Macchu Picchu
I would like to take a moment and step back into time before moving forward from my grief of my dear friend, Jason, and continue my blog with stories of our recent Disneyland trip, my family’s visit to our home and my upcoming medical procedures and tests. So I hope...
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The Legacy of Jason Lee
In my opinion, Jason Lee was the most important figure in the AntiSynthetase Syndrome community to date. He sadly passed away due to complications of ASS last week, and it has rocked the world of all that knew him. It didn’t matter that the majority of the ASS...
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The Other Type of Possiblity
As has been discussed a few times – I was warned that things could go very badly for my lungs. But I was promised something else that may not have come to fruition. When I was with the Rheumatologist at Mayo Clinic he asked me numerous questions about whether or not I...
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From Impossible to Possible
Once upon a time, not so long ago, I was unable to walk across my living room without my oxygen dropping below the threshold of 90. When oxygen drops below 90, it begins to kill off your brain cells and does internal damage to your organs. I was not able to sleep...
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More Confusing Results
I’ve been waiting a week and a half for my dermatology results. I figured since Friday came and went, I wouldn’t hear until Monday. My doctor surprised me today (Saturday) with a phone call. It turned out the eye rash came back negative and he said it was just...
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