Fatigue…

Fatigue…

Wow, this week has been a tough one. It seems I have multiple things working against me, and I let it all bog me down. Maybe I needed some down time, but it doesn’t feel like it since I don’t feel better after a week of it, but I found it really difficult to fight...
The Miracle Poison

The Miracle Poison

Oh Prednisone…you save my life and give me back my breath and free me from debilitating pain and then bizarrely mess with my body and threaten me in all sorts of new ways.  Let’s discuss the history of our relationship together. Pre-diagnosis I was put on...
Living the Tethered Life

Living the Tethered Life

The last few weeks have been very freeing, and they have provided a new path for my life with some increased hope. All this greatness is due to just a couple simple facts. Fitbit came out with a product that also tracks your heart rate, and I finally realized I need a...
Already in the After

Already in the After

“Every patient’s story starts the same way . . . It starts with them being fine. It starts in the before. They cling to this moment, this memory of being fine, this before as though talking about it might somehow bring it back. But what they don’t realize is that the...
How to separate the physical from the emotional???

How to separate the physical from the emotional???

I pose the title as a question because I really don’t yet know the answer. Maybe it just comes in time? Maybe there is some kind of exercise, counseling session, mindfulness meditation (medication?) . . . whatever I can do or level of acceptance I can achieve that...
An Extra Pair of Hands (or two…or three)

An Extra Pair of Hands (or two…or three)

Why I Need a Support System Well, this wasn’t my intended next post, but given the way I’m feeling today, I figure I will inject it here, anyway. Some days are better than others, and this is one of those others. Today I’m having a lot of pressure and tightness in my...

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