How to Love a Person with a Chronic Illness

by relativelyunscathed | Jun 19, 2017

Everything I learned about loving a person with a chronic illness , I learned from my husband. I know I have been very fortunate in this way. Despite the vows, one can never be 100% sure how their partner will react when a spouse suddenly is diagnosed with something...

2 Years After

by Sandra | Oct 10, 2016

Well, it is that time of year again where dates are flying towards me and reminding me of the first days, weeks and months of this new life of mine. It is a time of reflection and admittedly, sadness. Although one is not able to conjure up the feeling of physical pain...

Always.Wanting.More.

by Sandra | Sep 12, 2016

Some may look at that title and think that wanting more than what you have is a bad thing…but not me. It is the thing that keeps me going. It is the thing that has provided me with drive and determination. It is what made me travel the world. It is what made me come...

Interlude – Macchu Picchu

by Sandra | Aug 3, 2016

I would like to take a moment and step back into time before moving forward from my grief of my dear friend, Jason, and continue my blog with stories of our recent Disneyland trip, my family’s visit to our home and my upcoming medical procedures and tests. So I hope...

The Legacy of Jason Lee

by Sandra | Aug 1, 2016

In my opinion, Jason Lee was the most important figure in the AntiSynthetase Syndrome community to date. He sadly passed away due to complications of ASS last week, and it has rocked the world of all that knew him. It didn’t matter that the majority of the ASS...

From Impossible to Possible

by Sandra | Jun 9, 2016

Once upon a time, not so long ago, I was unable to walk across my living room without my oxygen dropping below the threshold of 90. When oxygen drops below 90, it begins to kill off your brain cells and does internal damage to your organs. I was not able to sleep...