In Memory of Fera

In Memory of Fera

I try to keep an overall theme on my blog of positivity and silver linings, even in the face of difficult challenges.  However, there is a reality to this disease and a reminder of what this fight is all about.  I have determined that I’m partly responsible for...
Food: The Final Frontier

Food: The Final Frontier

It’s been awhile since my last post. I’ve been doing a lot of thinking about what my next moves are – in life and for this blog. And this is what I’ve worked out so far: For some time now I’ve enjoyed a certain level of predictability in my life. My symptoms, while...
2 Years After

2 Years After

Well, it is that time of year again where dates are flying towards me and reminding me of the first days, weeks and months of this new life of mine. It is a time of reflection and admittedly, sadness. Although one is not able to conjure up the feeling of physical pain...
Always.Wanting.More.

Always.Wanting.More.

Some may look at that title and think that wanting more than what you have is a bad thing…but not me. It is the thing that keeps me going. It is the thing that has provided me with drive and determination. It is what made me travel the world. It is what made me come...
Interlude – Macchu Picchu

Interlude – Macchu Picchu

I would like to take a moment and step back into time before moving forward from my grief of my dear friend, Jason, and continue my blog with stories of our recent Disneyland trip, my family’s visit to our home and my upcoming medical procedures and tests. So I hope...
The Legacy of Jason Lee

The Legacy of Jason Lee

In my opinion, Jason Lee was the most important figure in the AntiSynthetase Syndrome community to date. He sadly passed away due to complications of ASS last week, and it has rocked the world of all that knew him. It didn’t matter that the majority of the ASS...

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